![]() The United Kingdom’s Human Rights Act 1998 defines privacy as “everyone has the right to respect for private and family life, home and correspondence” in Article 8. However, such potential could be hindered by legitimate concerns over privacy. Developments achieved in the industry and the health care sector reveal the huge potential of data science in health care because of the common availability of medical patient data for secondary use (secondary use, also dubbed as reuse, of health care data refers to the use of data for a different purpose than the one for which the data were originally collected). Of late, pervasive health care has become the central topic, attracting intensive attention and interest from academia, industry, and the general health care sector. In addition, tools to support measuring the risk of the anonymized data with regard to reidentification against the usefulness of the data exist, but there are question marks over their efficacy.ĭigital health encompasses several distinct domains, including but not limited to automatic visual diagnostic systems, medical image segmentation, continuous patient monitoring, clinical data–driven decision support systems, connected biometric sensors, and expert-knowledge–based consultations using personal electronic health records (EHRs). ![]() Off-the-shelf data anonymization tools are developed frequently, but privacy-related functionalities are often incomparable with regard to use in different problem domains. Although health care organizations have internal policies defined for information governance, there is a significant lack of practical tools and intuitive guidance about the use of data for research and modeling. Raw data are commonly anonymized to be used for research purposes, with risk assessment for reidentification and utility. Identifiable personal and sensitive information must be sufficiently anonymized. Any other use of the data requires thoughtful considerations of the legal context and direct patient consent. For health care providers, legal use of the electronic health record (EHR) is permitted only in clinical care cases. ![]() Recent regulations enforce the need for a clear legal basis for collecting, processing, and sharing data, for example, the European Union’s General Data Protection Regulation (2016) and the United Kingdom’s Data Protection Act (2018). Using data science in digital health raises significant challenges regarding data privacy, transparency, and trustworthiness. Data science offers an unparalleled opportunity to identify new insights into many aspects of human life with recent advances in health care.
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